Collecting, analysing and reporting variables related to cultural and linguistic diversity (CALD) in dementia research - a scoping review

Presenter: Dr Samantha Croy and Julieta Sabates, NARI

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About the presentation

The need for greater representation of culturally and linguistically diverse (CALD) people in dementia research is acknowledged, yet there are no clear guidelines about what CALD variables should be collected in dementia studies, and how these should be analysed and reported. We report on a scoping review conducted for the NHMRC National Institute for Dementia Research (NNIDR) on approaches in existing dementia clinical and cohort studies focused on CALD populations in high-income countries. We compare the approaches, identify exemplars, and make recommendations for consistent practices in dementia research.

About the presenter

Julieta Sabates is a Research Officer at NARI and a PhD candidate at the Academic Unit for Psychiatry of Old Age at the University of Melbourne. She completed a 6-year degree in Psychology at the University of Buenos Aires, and two postgraduate specialisation clinical degrees in schizophrenia. Julieta’s PhD research focuses on cognitive interventions for neuropsychiatric symptoms of people with young-onset dementia.

Samantha Croy is a Research Fellow at NARI. She was NNIDR project officer based at NARI, contributing to development of the CALD Dementia Research Action Plan. Samantha’s background is in the anthropology and sociology of science and medicine, and she is interested in exploring how qualitative research on CALD participation in dementia research can contribute to greater inclusion.    

Further information: [email protected]

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